Resources

Mast Cell Activation Syndrome

MCAS is not a straightforward forward easy to explain chronic illness. So we are pulling great resources into one place to try and help you get to answers quicker.

MCAS Resources

Below are some resources that have been very helpful. If you know of other helpful resources, please advise as we want to have as many resources available quickly for others to find.

Helping you find resources quickly is our goal. If you have a resource you believe should be added, please send it via this Contact Form.

We are a UK-based charity supporting people affected by Mast Cell Disease. We are founded and run by people who have MCAS or care for someone with MCAS, so we know exactly how it feels! More

  • Emergency Room Brocure
  • Patient Resource Guide
  • Emergency Alert Card
  • Child Advocacy In the ER
    Find Here
StuffThatWorks helps people with chronic conditions figure out which treatments work best using crowdsourcing and AI. MCAS is one of the groups. Find Here
Checking the ingredients in your products has never been easier thanks to INCI DECODER. And we do need to check our makeup and bath/body ingredients! Find Here
Finding a doctor can be tough. Hope this helps.
Find the Top Mast Cell Activation Syndrome (MCAS) Experts and Specialists.  Find Here

MCAS Resource Articles

friends and family

Online MCAS Communities

There are several online communities where people with Mast Cell Activation Syndrome (MCAS) share experiences, advice, and support. Here’s a list of forums, Facebook groups, Reddit communities, and other resources you might find helpful. 📌 Forums & Websites 📌 Facebook Groups 💡 Most groups require you to request to join and answer screening questions. 📌 […]
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What is the Spoon Theory with Chronic Illness?

The Spoon Theory is a metaphor used to describe the limited energy and resources available to people with chronic illnesses. It was created by Christine Miserandino to explain to a friend what it’s like to live with lupus, but it has since been widely adopted by people with various chronic conditions. Here’s an overview of […]
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Histamine Bucket Theory - does it work

The Histamine Bucket Theory and Does It Work

The histamine bucket theory is a conceptual model used to explain how individuals can experience symptoms of histamine intolerance. According to this theory, each person has a “bucket” that represents their capacity to handle histamine. This bucket gradually fills up with histamine from various sources, including food, environmental factors, stress, and internal production. When the […]
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The Histamine Bucket Theory

The Histamine Bucket Theory

So why can sometimes you and I can tolerate some foods and other times we can not? I mean even the same food! Why are some scents tolerated and other times they are not (same scent), and so on and on… one day it’s ok the next it is not…. This always baffled me and […]
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Creating MCAS – Hub

I am a web designer but nothing I have designed has come this easy and this fast but here’s the issue….. I have no one to show this to. This is why maybe this is so needed. I know no one personally that I can discuss MCAS issues, triggers, symptoms, medications, and just plain how […]
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MCAS Resource

Welcome to the MCAS resource site! My goal is to put MCAS resources in one place, so to help navigate this world of MCAS. My story is like so many others. I have symptoms all over the place, and doctors pass me off to other doctors making me feel well a bit insane. I know […]
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How you Can Help

Submit your stories, your journeys, your tips and triggers.

Story/Journey

Share your journey, everyone's story will differ but fall under the same MCAS prognosis. 

Tips

Share your useful tips and help others navigate this journey. These will vary too! 

Triggers

It can help to hear what triggers are for others and maybe find what might triggered you. 

Medication

Medication info from others can be very helpful. Need Doctors consent - of course. 

Resources

We are gathering great resources in one place to try and help you get answers quicker. 

Share Here or
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Let's Put The Pieces Together

Can we put the pieces of our puzzle together to maximize the outcome for the future? Let's give it a try one story and one piece of advice at a time.

Living with MCAS

This is difficult! Let's find a friend, a tribe, a community, a place where people "get us". A place we know there will be someone to support and understand what's happening. This is hard - let's make it a tad easier.

This is an opportunity to help, hope you will join (of course only when you can).

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