Triggers

Mast Cell Activation Syndrome

Triggers are vast and vary for everyone. Finding and knowing your triggers will help immensely. But sometimes these triggers are very hard to find, believe, and even notice. Hopefully reading a list of other people's triggers can help define yours.

Barometric Pressure Effects on Mast Cell Activation Syndrome (MCAS) and Dysautonomia

Barometric pressure changes can significantly affect both Mast Cell Activation Syndrome (MCAS) and dysautonomia due to the body’s sensitivity to environmental changes. Here’s how: Effects on Mast Cell Activation Syndrome (MCAS): Effects on Dysautonomia: Coping Strategies: Both conditions require a personalized approach, so discussing these strategies with a healthcare provider is essential for managing symptoms […]

Is it Dysautonomia or MCAS – what are the differences and the overlap and how to tell them apart?

So you would think this would be easy, right???? Well, today I can not tell. So I asked Lily – still, there are overlaps but maybe it will help. Dysautonomia and Mast Cell Activation Syndrome (MCAS) are two distinct medical conditions that can sometimes present with overlapping symptoms, making them challenging to differentiate. Here’s a […]

List of MCAS Triggers

MCAS triggers are far more than I can list on my own. So below I have a list generated by Lilly (our AI writer ; )). Not only are there so many, its soooo confusing. Triggers can come and go, they are not the same for everyone, and they can pop up at any time. […]

The Histamine Bucket Theory

So why can sometimes you and I can tolerate some foods and other times we can not? I mean even the same food! Why are some scents tolerated and other times they are not (same scent), and so on and on… one day it’s ok the next it is not…. This always baffled me and […]

In-Depth Explanation Of MCAS

I had been searching and Googling MCAS for months then my son introduced me to ChatGPT. I never thought anything could replace Google but I was wrong. ChatGPT gave me a more concise explanation in one well-written article. Did I think I would be finding articles with AI – nope, but if we can get […]

To Our Family & Friends

How to help your family and friends understand this unfamiliar territory. Mast Cell Activation Syndrome – is a condition that causes mast cells to release an inappropriate amount of chemicals into your body. Like an allergy but different. These chemicals wreak havoc in our bodies all the while changing the triggers (what sets off these […]

MCAS Resource

Welcome to the MCAS resource site! My goal is to put MCAS resources in one place, so to help navigate this world of MCAS. My story is like so many others. I have symptoms all over the place, and doctors pass me off to other doctors making me feel well a bit insane. I know […]

Triggers

Getting a whole community involved will hopefully help us get answers quicker.

There are so many of us and so many more just starting this journey. We need answers but what can we do when the answers don't come quick enough.... find a community and put the pieces together with everyone who is on and has been through this journey.

As a community let's put out good information and be as helpful as we can. I was given a lot of help from several communities but had to dig and find them. The goal here is to put all these awesome resources in one spot so that you can easily find what helps you the most.

How you Can Help

Submit your stories, your journeys, your tips and triggers.

Story/Journey

Share your journey, everyone's story will differ but fall under the same MCAS prognosis.

Tips

Share your useful tips and help others navigate this journey. These will vary too!

Triggers

It can help to hear what triggers are for others and maybe find what might triggered you.

Medication

Medication info from others can be very helpful. Need Doctors consent - of course.

Resources

We are gathering great resources in one place to try and help you get answers quicker.

Share Here or

Learn More

Let's Put The Pieces Together

Can we put the pieces of our puzzle together to maximize the outcome for the future? Let's give it a try one story and one piece of advice at a time.

Living with MCAS

This is difficult! Let's find a friend, a tribe, a community, a place where people "get us". A place we know there will be someone to support and understand what's happening. This is hard - let's make it a tad easier.

This is an opportunity to help, hope you will join (of course only when you can).