Tips

Mast Cell Activation Syndrome

MCAS is not a straightforward forward easy to explain chronic illness. So we are pulling great tips into one place to try and help you get to answers quicker.

What is the Spoon Theory with Chronic Illness?

The Spoon Theory is a metaphor used to describe the limited energy and resources available to people with chronic illnesses. It was created by Christine Miserandino to explain to a friend what it’s like to live with lupus, but it has since been widely adopted by people with various chronic conditions. Here’s an overview of […]

The Histamine Bucket Theory and Does It Work

The histamine bucket theory is a conceptual model used to explain how individuals can experience symptoms of histamine intolerance. According to this theory, each person has a “bucket” that represents their capacity to handle histamine. This bucket gradually fills up with histamine from various sources, including food, environmental factors, stress, and internal production. When the […]

Dysautonomia

Dysautonomia came up during my doctor’s visit today. This is not the first time I have heard of dysautonomia but this time, it makes sense. This time I realized that maybe there was something to this as I had stopped eating salty snacks as a wedding is coming and losing a few pounds would be […]

The Histamine Bucket Theory

So why can sometimes you and I can tolerate some foods and other times we can not? I mean even the same food! Why are some scents tolerated and other times they are not (same scent), and so on and on… one day it’s ok the next it is not…. This always baffled me and […]

MCAS Resource

Welcome to the MCAS resource site! My goal is to put MCAS resources in one place, so to help navigate this world of MCAS. My story is like so many others. I have symptoms all over the place, and doctors pass me off to other doctors making me feel well a bit insane. I know […]

Tips

Getting a whole community involved will hopefully help us get answers quicker.

There are so many of us and so many more just starting this journey. We need answers but what can we do when the answers don't come quick enough.... find a community and put the pieces together with everyone who is on and has been through this journey.

As a community let's put out good information and be as helpful as we can. I was given a lot of help from several communities but had to dig and find them. The goal here is to put all these awesome resources in one spot so that you can easily find what helps you the most.

How you Can Help

Submit your stories, your journeys, your tips and triggers.

Story/Journey

Share your journey, everyone's story will differ but fall under the same MCAS prognosis.

Tips

Share your useful tips and help others navigate this journey. These will vary too!

Triggers

It can help to hear what triggers are for others and maybe find what might triggered you.

Medication

Medication info from others can be very helpful. Need Doctors consent - of course.

Resources

We are gathering great resources in one place to try and help you get answers quicker.

Share Here or

Learn More

Let's Put The Pieces Together

Can we put the pieces of our puzzle together to maximize the outcome for the future? Let's give it a try one story and one piece of advice at a time.

Living with MCAS

This is difficult! Let's find a friend, a tribe, a community, a place where people "get us". A place we know there will be someone to support and understand what's happening. This is hard - let's make it a tad easier.

This is an opportunity to help, hope you will join (of course only when you can).