Articles and Blog

Mast Cell Activation Syndrome

Articles and tips about living with MCAS from others who are living it and have been on this journey for a while.

Mel Robbins – Let Them – Let Me – Chronic Illness

So, I am a lover of good words, profound sayings, and easy-to-digest pieces of thought that can transform your soul, change your actions, and simply make life better. Take, for instance, a beautiful older lady in a Walmart pharmacy who saw me about to explode with two sick little ones and the pharmacist telling me […]

Online MCAS Communities

There are several online communities where people with Mast Cell Activation Syndrome (MCAS) share experiences, advice, and support. Here’s a list of forums, Facebook groups, Reddit communities, and other resources you might find helpful. 📌 Forums & Websites 📌 Facebook Groups 💡 Most groups require you to request to join and answer screening questions. 📌 […]

Tired After Eating With MCAS?

Feeling tired after eating with Mast Cell Activation Syndrome (MCAS) is a common issue and can happen for several reasons related to mast cell overactivity. Here’s why it might be happening and what you can do about it: Possible Reasons for Fatigue After Eating with MCAS 1. Histamine and Other Mast Cell Mediators 2. Postprandial […]

MCAS and LDN (low-dose naltrexone)

Mast Cell Activation Syndrome (MCAS) is a condition where mast cells—part of the immune system—release excessive or inappropriate amounts of chemicals (mediators) like histamine, prostaglandins, and cytokines, leading to symptoms such as hives, flushing, gastrointestinal issues, and anaphylaxis-like reactions. Low-Dose Naltrexone (LDN) and MCAS Low-dose naltrexone (LDN) is an off-label treatment that some doctors and […]

A woman sitting indoors covering her face in frustration, depicting stress and mental health challenges.

MCAS and Migraines: Understanding the Connection and Managing the Pain

Living with Mast Cell Activation Syndrome (MCAS) presents many challenges, and for those who also experience migraines, the overlap can feel overwhelming. But understanding how these conditions interact can empower you to better manage symptoms and improve your quality of life. Let’s dive into the connection between MCAS and migraines, common triggers, and actionable steps […]

The Holidays with MCAS – After Thoughts

This should be happy times (and it is) minus the few things that get in the way. Food, scents, pine, off gassing new clothes, off gassing new gadgets, wine, weather, and the list goes on and on. It can be isolating, mind-boggling, and truly a test of self. The season is over. The food is […]

Woman in Black Leather Jacket Sitting on Brown Wooden Floor

Am I Crazy or is it MCAS

Managing Mast Cell Activation Syndrome (MCAS) can be challenging due to fluctuating symptoms. Learn why symptoms like asthma or POTS may vary and how to better manage them.

Barometric Pressure Effects on Mast Cell Activation Syndrome (MCAS) and Dysautonomia

Barometric pressure changes can significantly affect both Mast Cell Activation Syndrome (MCAS) and dysautonomia due to the body’s sensitivity to environmental changes. Here’s how: Effects on Mast Cell Activation Syndrome (MCAS): Effects on Dysautonomia: Coping Strategies: Both conditions require a personalized approach, so discussing these strategies with a healthcare provider is essential for managing symptoms […]

MCAS Lung Coughing and Congestion

Mast Cell Activation Syndrome (MCAS) can cause coughing and lung congestion due to mast cells’ role in the body’s immune response. Here’s a breakdown of how this works: Mast Cells and Their Function Mast cells are a type of white blood cell involved in allergic reactions and immune defense. When triggered, they release chemicals like […]

What is the Spoon Theory with Chronic Illness?

The Spoon Theory is a metaphor used to describe the limited energy and resources available to people with chronic illnesses. It was created by Christine Miserandino to explain to a friend what it’s like to live with lupus, but it has since been widely adopted by people with various chronic conditions. Here’s an overview of […]

Is it Dysautonomia or MCAS – what are the differences and the overlap and how to tell them apart?

So you would think this would be easy, right???? Well, today I can not tell. So I asked Lily – still, there are overlaps but maybe it will help. Dysautonomia and Mast Cell Activation Syndrome (MCAS) are two distinct medical conditions that can sometimes present with overlapping symptoms, making them challenging to differentiate. Here’s a […]

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Why Does Increasing Salt Help Dysautonomia?

Increasing salt intake can help manage symptoms of certain types of dysautonomia, particularly Postural Orthostatic Tachycardia Syndrome (POTS), a common form of dysautonomia. Dysautonomia refers to a group of conditions that affect the autonomic nervous system, which controls involuntary bodily functions like heart rate, blood pressure, digestion, and temperature regulation. Here’s how increased salt intake […]

Articles

Getting a whole community involved will hopefully help us get answers quicker.

There are so many of us and so many more just starting this journey. We need answers but what can we do when the answers don't come quick enough.... find a community and put the pieces together with everyone who is on and has been through this journey.

As a community let's put out good information and be as helpful as we can. I was given a lot of help from several communities but had to dig and find them. The goal here is to put all these awesome resources in one spot so that you can easily find what helps you the most.

How you Can Help

Submit your stories, your journeys, your tips and triggers.

Story/Journey

Share your journey, everyone's story will differ but fall under the same MCAS prognosis.

Tips

Share your useful tips and help others navigate this journey. These will vary too!

Triggers

It can help to hear what triggers are for others and maybe find what might triggered you.

Medication

Medication info from others can be very helpful. Need Doctors consent - of course.

Resources

We are gathering great resources in one place to try and help you get answers quicker.

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Let's Put The Pieces Together

Can we put the pieces of our puzzle together to maximize the outcome for the future? Let's give it a try one story and one piece of advice at a time.

Living with MCAS

This is difficult! Let's find a friend, a tribe, a community, a place where people "get us". A place we know there will be someone to support and understand what's happening. This is hard - let's make it a tad easier.

This is an opportunity to help, hope you will join (of course only when you can).