Family and Friends

Mast Cell Activation Syndrome

Family and friends, we know how frustrating this is for you as well as us. Hopefully, this information will give you a better understanding of what we are dealing with, how you can help, and how we can manage this together. Thank you for your patience, love, and support.

The Holidays with MCAS – After Thoughts

This should be happy times (and it is) minus the few things that get in the way. Food, scents, pine, off gassing new clothes, off gassing new gadgets, wine, weather, and the list goes on and on. It can be isolating, mind-boggling, and truly a test of self. The season is over. The food is […]

What is the Spoon Theory with Chronic Illness?

The Spoon Theory is a metaphor used to describe the limited energy and resources available to people with chronic illnesses. It was created by Christine Miserandino to explain to a friend what it’s like to live with lupus, but it has since been widely adopted by people with various chronic conditions. Here’s an overview of […]

Surviving, Thriving, or Hiding, With MCAS

Surviving, thriving, or maybe even hiding while living with MCAS? Today and this past year I am surviving. Striving to get back to my “normal” has been insanely hard. Feeling great and going down (which means an asthma attack, inhalers, white Benadryl, sleep, and repeat) has been more of my norm lately. This is NOT […]

MCAS is…..

Scary, isolating, and devastating, and no one seems to get it except other MCAS patients. Why? Most likely because no one really knows about it unless it’s affecting you or someone you love. Imagine being highly allergic to peanuts and you go through a store or an airport and you know someone is going to […]

The Histamine Bucket Theory

So why can sometimes you and I can tolerate some foods and other times we can not? I mean even the same food! Why are some scents tolerated and other times they are not (same scent), and so on and on… one day it’s ok the next it is not…. This always baffled me and […]

To Our Family & Friends

How to help your family and friends understand this unfamiliar territory. Mast Cell Activation Syndrome – is a condition that causes mast cells to release an inappropriate amount of chemicals into your body. Like an allergy but different. These chemicals wreak havoc in our bodies all the while changing the triggers (what sets off these […]

Friends and Family

Getting a whole community involved will hopefully help us get answers quicker.

There are so many of us and so many more just starting this journey. We need answers but what can we do when the answers don't come quick enough.... find a community and put the pieces together with everyone who is on and has been through this journey.

As a community let's put out good information and be as helpful as we can. I was given a lot of help from several communities but had to dig and find them. The goal here is to put all these awesome resources in one spot so that you can easily find what helps you the most.

How you Can Help

Submit your stories, your journeys, your tips and triggers.

Story/Journey

Share your journey, everyone's story will differ but fall under the same MCAS prognosis.

Tips

Share your useful tips and help others navigate this journey. These will vary too!

Triggers

It can help to hear what triggers are for others and maybe find what might triggered you.

Medication

Medication info from others can be very helpful. Need Doctors consent - of course.

Resources

We are gathering great resources in one place to try and help you get answers quicker.

Share Here or

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Let's Put The Pieces Together

Can we put the pieces of our puzzle together to maximize the outcome for the future? Let's give it a try one story and one piece of advice at a time.

Living with MCAS

This is difficult! Let's find a friend, a tribe, a community, a place where people "get us". A place we know there will be someone to support and understand what's happening. This is hard - let's make it a tad easier.

This is an opportunity to help, hope you will join (of course only when you can).