This should be happy times (and it is) minus the few things that get in the way. Food, scents, pine, off gassing new clothes, off gassing new gadgets, wine, weather, and the list goes on and on. It can be isolating, mind-boggling, and truly a test of self. The season is over. The food is […]
The Spoon Theory is a metaphor used to describe the limited energy and resources available to people with chronic illnesses. It was created by Christine Miserandino to explain to a friend what it’s like to live with lupus, but it has since been widely adopted by people with various chronic conditions. Here’s an overview of
Surviving, thriving, or maybe even hiding while living with MCAS? Today and this past year I am surviving. Striving to get back to my “normal” has been insanely hard. Feeling great and going down (which means an asthma attack, inhalers, white Benadryl, sleep, and repeat) has been more of my norm lately. This is NOT
Scary, isolating, and devastating, and no one seems to get it except other MCAS patients. Why? Most likely because no one really knows about it unless it’s affecting you or someone you love. Imagine being highly allergic to peanuts and you go through a store or an airport and you know someone is going to
So why can sometimes you and I can tolerate some foods and other times we can not? I mean even the same food! Why are some scents tolerated and other times they are not (same scent), and so on and on… one day it’s ok the next it is not…. This always baffled me and
How to help your family and friends understand this unfamiliar territory. Mast Cell Activation Syndrome – is a condition that causes mast cells to release an inappropriate amount of chemicals into your body. Like an allergy but different. These chemicals wreak havoc in our bodies all the while changing the triggers (what sets off these
